Moral distress within neonatal and paediatric intensive care units: a systematic review

T Prentice, A Janvier, L Gillam, PG Davis - Archives of disease in …, 2016 - adc.bmj.com
Objective To review the literature on moral distress experienced by nursing and medical
professionals within neonatal intensive care units (NICUs) and paediatric intensive care …

Communication with parents concerning withholding or withdrawing of life-sustaining interventions in neonatology

A Janvier, K Barrington, B Farlow - Seminars in perinatology, 2014 - Elsevier
The nature and content of the conversations between the healthcare team and the parents
concerning withholding or withdrawing of life-sustaining interventions for neonates vary …

Personalized decision making: practical recommendations for antenatal counseling for fragile neonates

MF Haward, N Gaucher, A Payot… - Clinics in …, 2017 - perinatology.theclinics.com
Fifty years ago, it was not rare for infants born with congenital anomalies or near-term to die.
Neonatology is a recent specialty, emerging in the 1960s as a discipline dedicating itself to …

Apnea is associated with neurodevelopmental impairment in very low birth weight infants

A Janvier, M Khairy, A Kokkotis, C Cormier… - Journal of …, 2004 - nature.com
METHODS: We determined the number of days that apnea and bradycardia spells were
noted by the nursing staff, during the initial hospitalization of 175 preterm infants of less …

The experience of families with children with trisomy 13 and 18 in social networks

A Janvier, B Farlow, BS Wilfond - Pediatrics, 2012 - publications.aap.org
BACKGROUND: Children with trisomy 13 and trisomy 18 (T13-18) have low survival rates
and survivors have significant disabilities. For these reasons, interventions are generally not …

Categorizing neonatal deaths: a cross-cultural study in the United States, Canada, and the Netherlands

AAE Verhagen, A Janvier, SR Leuthner… - The Journal of …, 2010 - Elsevier
OBJECTIVE: To clarify the process of end-of-life decision-making in culturally different
neonatal intensive care units (NICUs). STUDY DESIGN: Review of medical files of …

Our children are not a diagnosis: the experience of parents who continue their pregnancy after a prenatal diagnosis of trisomy 13 or 18

J Guon, BS Wilfond, B Farlow, T Brazg… - American journal of …, 2014 - Wiley Online Library
Trisomy 13 and trisomy 18 (T13‐18) are associated with high rates of perinatal death and
with severe disability among survivors. Prenatal diagnosis (PND) may lead many women to …

Cohort study of probiotics in a North American neonatal intensive care unit

A Janvier, J Malo, KJ Barrington - The Journal of pediatrics, 2014 - Elsevier
Objective To determine whether routine probiotic administration to very preterm infants
would reduce the incidence of necrotizing enterocolitis (NEC) without adverse …

Parental hopes, interventions, and survival of neonates with trisomy 13 and trisomy 18

A Janvier, B Farlow… - American Journal of …, 2016 - Wiley Online Library
Trisomy 13 and 18 are life‐limiting conditions for which a palliative approach is frequently
recommended. The objective of this study was to examine parental goals/decisions, the …

LRPPRC mutations cause a phenotypically distinct form of Leigh syndrome with cytochrome c oxidase deficiency

FG Debray, C Morin, A Janvier, J Villeneuve… - Journal of medical …, 2011 - jmg.bmj.com
Background The natural history of all known patients with French-Canadian Leigh disease
(Saguenay-Lac-St-Jean cytochrome c oxidase deficiency, MIM220111, SLSJ-COX), the …