Table 4

Examples of quotes provided by parents

Development “Her language, I wish she would express herself more clearly.” Mother of a 3-year-old girl born at 26 weeks
“A better management of his crises (when he gets out of control).” Father of 5-year-old born at 27 weeks
“She acts like a baby, I’m worried about school.” Mother of a 3-year-old girl born at 26 weeks
“His gross motor skills, including running.” Mother of a 3-year-old boy born at 27 weeks
Respiratory health and fragility “His lungs are still fragile.” Mother of a 5-year-old boy born at 25 weeks
“His immune system, his pneumonias, he is sick all the time.” Mother of an 18-month-old boy born at 27 weeks
Inflammation of his lungs every time he catches a virus.”Father of 18-month-old boy born at 28 weeks
Growth and nutrition “I hope she will learn how to eat.” Father of an 18-month-old girl born at 25 weeks
Remove her gastrostomy.” Mother of an 18-month-old girl born at 23 weeks
“His reflux and frequent vomiting. He does not eat much.” Father of 5-year-old boy born at 25 weeks