: Summary of responses to questions around clinical scenarios
| Scenario 1 | Scenario 2 | Scenario 3 | Scenario 4 | |
| ‘A premature infant born at 26 weeks’ gestation (birth weight 800 g) deteriorates clinically on day 3 of life. An isolated perforation of the distal small bowel (ileum) is found at laparotomy and a stoma and mucous fistula are formed at this level.’ | ‘A premature infant born at 26 weeks’ gestation (birth weight 800 g) develops clinical signs of NEC at 4 weeks of age. A laparotomy confirms diffuse small bowel involvement and 50 cm of bowel is resected. A stoma and mucous fistula are formed at the level of the mid-jejunum.’ | ‘A term infant is born with signs of distal bowel obstruction and a failure to pass meconium. “Simple” meconium ileus and a micro-colon are found at laparotomy. A stoma and mucous fistula are formed in the mid-ileum.’ | ‘A term infant is born with signs of proximal bowel obstruction and a failure to pass meconium. At laparotomy, a jejunal atresia is found. A stoma and mucous fistula are formed at the site of the atresia (mid-jejunum).’ | |
| Target stoma closure time | n=118/166 (71%) weeks specified: median (IQR)=8 (6, 12), mode=6 n=48/166 (29%) unsure | n=110/166 (66%) weeks specified: median (IQR)=8 (6, 10), mode=6 n=56/166 (34%) unsure | n=105/166 (63%) weeks specified: median (IQR)=4 (6, 8), mode=6 n=61/166 (37%) unsure | n=104/166 (63%) weeks specified: median (IQR)=6 (4, 6), mode=6 n=62/166 (37%) unsure |
| Preference for closure in relation to discharge | Before: 117 (70%) After: 25 (15%) Unsure: 24 (14%) | Before: 126 (76%) After: 15 (9%) Unsure: 25 (15%) | Before: 77 (46%) After: 53 (32%) Unsure: 36 (22%) | Before: 120 (72%) After: 26 (16%) Unsure: 20 (12%) |
| Earliest experience of closure in comparable scenario | n=153/166 (92%) weeks specified: median (IQR)=6 (4, 6), mode=6 | n=153/166 (92%) weeks specified: median (IQR)=6 (4, 8), mode=6 | n=135/166 (81%) weeks specified: median (IQR)=4 (4, 6), mode=4 | n=125/166 (75%) weeks specified: median (IQR)=4 (3, 6), mode=4 |
| Latest experience of closure in comparable scenario | n=154/166 (93%) weeks specified: median (IQR)=20 (12, 30), mode=12 | n=143/166 (86%) weeks specified: median (IQR)=20 (12, 26), mode=12 | n=126/166 (76%) weeks specified: median (IQR)=16 (12, 24), mode=12 | n=115/166 (69%) weeks specified: median (IQR)=12 (8, 16), mode=12 |
NEC, necrotising enterocolitis.