Table 2

Ranking of themes by the external panel (round 1, n=60)

ThemeAverage ranking*Top 10 count†Top 5 count†Top 1 count†
Education of very preterm infants4.644183
Care and outcomes of extremely preterm birth, including ethical decisions4.538238
Growth and nutrition, including breast feeding4.136197
Emotional well-being and social inclusion3.533132
Parental stress3.533144
Impact of social circumstances on outcomes3.531156
Obstetrical and neonatal unit organisation and practices, including policies towards parents3.229145
Perinatal factors/treatments and long-term complications3.128154
Minor impairments and impact on learning and quality of life3.027111
Changes in disability status over time2.827103
Autism spectrum disorder and attention deficit and hyperactivity disorder2.32371
Cardiometabolic and pulmonary outcomes2.320112
Epigenetics/Genetic markers of poor outcomes2.12162
Motor development2.02080
Very preterm children from migrant families2.02270
Very severe fetal growth restriction1.918102
Intraventricular haemorrhage (IVH), including severe and less severe lesions1.61562
Necrotising enterocolitis (NEC)1.61641
The wider environment (environmental and neighbourhood exposures)1.21062
Cerebral palsy (CP), including linking to CP registers1.21311
Maternal obesity and/or diabetes1.01030
Sub-fertility treatment0.91130
Validating predictive models of hospitalisation after discharge0.9931
Severe maternal morbidity during childbirth0.91030
Older maternal age0.9930
Neurosensory impairments (blindness and deafness)0.7632
  • *See ‘Methods’ section for calculation of average rank.

  • †Number listing the theme as one of their top 10, 5 and 1 priorities.