Parental responses | Worst | Neutral | Best | |||
---|---|---|---|---|---|---|
How well did the team prepare you for the changes you would see in your baby over time? | 0 | 0 | 1 | 6 | 3 | |
How much support did the NICU team provide you during this process? | 0 | 0 | 1 | 4 | 5 | |
How frequently did the medical staff meet with you to discuss changes or what was happening to your baby? | 0 | 0 | 1 | 2 | 7 | |
How quickly did the NICU team respond to your concerns regarding pain symptoms? | 0 | 0 | 0 | 4 | 6 | |
How would you rate the quality of end-of-life care you and your child received? | 0 | 0 | 0 | 4 | 6 | |
Degree of pain of infant from parental perspectives | ||||||
Severe | Mild | None | ||||
How much pain or discomfort do you think your baby experienced after withdrawal of nutrition? | 1 | 1 | 5 | 3 | 0 |
NICU, neonatal intensive care unit.