Questions about the seven individual studies
| Values are percentages with range in parentheses. Some questions were not answered, or the babies were not eligible for every study, so not all the results have the same number of participants. | |
| I felt if my baby joined the study he/she would receive… | |
| N = 83 | |
| Worse care | 5 (0–18) |
| The same care | 78 (64–82) |
| Better care | 15 (8–36) |
| I felt if my baby joined the study the care for the babies in the future would be… | |
| N = 79 | |
| No different | 6 (0–21) |
| Better | 17 (0–30) |
| Very much better | 77 (0–92) |
| I thought my baby was too small to go in this study. | |
| N = 82 | |
| Yes | 15 (0–27) |
| No | 85 (73–100) |
| I would prefer to have the doctor or nurse caring for my baby decide whether or not my baby should join this study rather than to be asked for consent | |
| N = 68 | |
| Doctor should decide | 2 (0–9) |
| Nurse should decide | 0 (0–0) |
| I want to decide | 98 (91–100) |