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Antenatal counselling of spina bifida: we need to do better
  1. Anthony Richard Hart1,
  2. Jenny Smith-Wymant2,
  3. Gill Yaz2
  1. 1Paediatric Neurology, Sheffield Children's NHS Foundation Trust, Sheffield, South Yorkshire, UK
  2. 2SHINE (Spina Bifida Hydrocephalus Information Networking Equality), Peterborough, UK
  1. Correspondence to Dr Anthony Richard Hart, Paediatric Neurology, Sheffield Children's NHS Foundation Trust, Sheffield S10 5DD, UK; a.r.hart{at}sheffield.ac.uk

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Screening is a routine part of pregnancy care, with ultrasound seen as a social rite of passage and a bonding opportunity,1 2 and many women report they are inadequately prepared for ultrasound finding an abnormality.1 3 After a fetal abnormality has been found, further investigations may be required, such as in-utero MRI, following which prospective parents need high-quality, understandable clinical information to make decisions about the management of their pregnancy.

Recently, SHINE (Spina Bifida, Hydrocephalus, Information, Network, Equality) published results from their survey of 71 families who had a child with spina bifida (SB) recruited from social media on antenatal counselling (found at www.shinecharity.org.uk/antenatal).4 …

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Footnotes

  • Contributors ARH wrote the letter; GY and JS-W collected and interpreted data, as well as reviewed and edited the letter.

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Provenance and peer review Not commissioned; internally peer reviewed.

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