Footnotes

• Contributors CMF reviewed the case notes and the literature and wrote the manuscript. DH performed and reported on the postmortem findings. CBDM was the lead consultant dealing with patient care and sought written consent from parents. BR supervised and proofread the manuscript.

• Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

• Competing interests None declared.

• Patient consent for publication Parental/guardian consent obtained.

• Provenance and peer review Not commissioned; internally peer reviewed.