Journal of Obstetric, Gynecologic & Neonatal Nursing
In FocusOne Facility's Experience in Reframing Nonfeeding into a Comprehensive Palliative Care Model
Section snippets
Case
Baby Amy (pseudonym) was born at 37 1/2‐weeks gestation to a married couple. At 32‐weeks gestation, the pregnancy was complicated by intrauterine growth restriction, oligohydramnios, and poor fetal monitoring testing results with spontaneous decelerations. Subsequently, Amy was born by a vaginal birth with Apgars of 2 at 1 minute and 8 at 5 minutes. Amy was apneic, treated with nasal continuous positive airway pressure (NCPAP), and eventually intubated. She was then treated for suspected
Discussion
The advantages of an inpatient pediatric palliative care center for end‐of‐life care for Amy and her family were numerous. Probably the most fundamental was the paradigm shift of being able to let parents be just that, parents. Amy's parents had been unwilling to take her home with hospice fearing that they would be unable to respond to her needs promptly in the wake of her changing medical condition. At GMCH they were able to be her parents with the assurance that expert advice and
Claire Vesely, RN, BSN, is a palliative care coordinator, Children's Hospital and Research Center, Oakland, CA.
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Claire Vesely, RN, BSN, is a palliative care coordinator, Children's Hospital and Research Center, Oakland, CA.
Barbara Beach, MD, is cofounder and medical director, George Mark Children's House, San Leandro, CA and a pediatric oncologist, Children's Hospital and Research Center, Oakland, CA.