Table 1

Stakeholder recruitment strategies

Stakeholder groupPanelRecruitment methods
People born with gastroschisisPersonal experience panelMailing lists, websites and Facebook groups of UK and international gastroschisis support groups.
Parents of children born with gastroschisisMailing lists and meetings for a Parental Advisory Group established by the National Perinatal Epidemiology Unit.
Paediatric surgeonsNeonatal panelDirect approaches to experts known to members of the SMG and those identified on a search of the British Association of Paediatric Surgeons (BAPS) register as having a special interest in management of children with gastroschisis.
BAPS mailing lists, newsletters and website.
Direct approach to clinical leads at each paediatric surgical centre in the UK for the BAPS-CASS gastroschisis study.
NeonatologistsNeonatal panelDirect approach to experts known to members of the SMG.
Mailing lists, bulletin and website of the British Association of Perinatal Medicine.
Fetal medicine specialistsNeonatal panelDirect approach to experts known to members of the SMG.
Mailing list of the fetal medicine clinical study group of the British Maternal and Fetal Medicine Society.
Specialist nursesNeonatal panelDirect approaches to experts known to members of the SMG.
Mailing list of the Neonatal Nurses Association and the National Neonatal Surgical Benchmarking Group.
PaediatriciansNon-neonatal panelDirect approach to experts known to members of the SMG.
Mailing list of the British Society of Paediatric Gastroenterology Hepatology and Nutrition.
ResearchersNon-neonatal panelDirect approaches to experts known to members of the SMG and prominent gastroschisis researchers identified through searches of the literature.
Specialist paediatric surgical nursesNeonatal panelDirect approach to experts known to members of the SMG.
DietitiansNon-neonatal panelDirect approach to experts known to members of the SMG.
Mailing list of the British Society of Paediatric Gastroenterology Hepatology and Nutrition.
  • BAPS-CASS,¬†British Association of Paediatric Surgeons Congenital Anomalies Surveillance System; SMG, Study Management Group.