Table 1

Typology of perceived decision making based on the qualitative assessment

Shared DMDiscussion on the nature of the decision.
Exchange of relevant medical information (medically reasonable alternatives).
Exchange of family values and preferences.
Parental choice about most appropriate decision.
Consensus reached with physicians.
Medical DMDecision made by physician(s).
No explicit parental involvement (tacit assent).
Informed parental DMMedical facts given by physician.
Deliberation and final decision by parents.
No discussion of values.
No decisionDeath despite maximal treatment.
  • DM, decision making.