Analysis* | |||||||
---|---|---|---|---|---|---|---|
Characteristics | No decision (N=23) | Medical decision (N=18) | Shared decision (N=31) | Informed parental decision (N=6) | Total (N=78) | X2/F (df) | Overall p |
Parents' socio-demographic characteristics | |||||||
Age (M±SD) | 34.1±5.0 | 35.3±4.5 | 33.4±4.4 | 31.7±4.8 | 33.9±4.6 | 2.56 (3) | ns |
Gender (% females) | 13 (56) | 13 (72) | 19 (66) | 3 (50) | 48 (61) | 1.45 (2) | ns |
Education (years) (M±SD) | 13.6±3.1 | 13.5±3.1 | 13.9±2.5 | 14.3±2.8 | 13.8±2.8 | 0.06 (3) | ns |
Current occupational activity (%) | 7.10 (6) | ns | |||||
Managerial and professional occupations | 10 (43) | 9 (50) | 20 (67) | 5 (83) | 44 (57) | ||
Manual and non-manual skilled occupations | 11 (48) | 6 (33) | 9 (30) | 1 (17) | 27 (35) | ||
Unemployed | 2 (8) | 3 (17) | 1 (3) | 0 | 6 (8) | ||
Origins (% white) | 22 (96) | 15 (83) | 29 (93) | 6 (100) | 72 (92) | 2.97 (2) | ns |
Single parent (%) | 1 (4.3) | 1 (5.6) | 2 (6.5) | 0 | 4 (5.1) | 0.47 (2) | ns |
Presence of another child (%) | 8 (34) | 11 (61) | 14 (45) | 2 (33) | 35 (49) | 3.19 (3) | ns |
Child characteristics | |||||||
Child's gender (% females) | 7 (30) | 3 (17) | 13 (42) | 2 (33) | 25 (32) | 3.37 (2) | ns |
Gestational age (weeks) (M±SD) | 35.0±5.8 | 31.9±6.1 | 31.35.4 | 26.3±4.2 | 32.1±6.0 | 14.1 (3) | 0.003 |
Duration of life (days) (median/range) | 4 (0–184) | 10 (2–97) | 17 (1–144) | 3.5 (2–144) | 9 (0–184) | 6.33 (3) | ns |
Medical diagnosis (%) | 11.7 (6) | ns | |||||
Systemic complications of prematurity | 8 (35) | 10 (56) | 18 (58) | 5 (83) | 41 (53) | ||
Perpartum anoxia at term | 6 (26) | 7 (39) | 5 (16) | 1 (17) | 19 (24) | ||
Congenital malformation/constitutional disease | 9 (39) | 1 (6) | 8 (26) | 0 | 18 (23) | ||
Parental description of the context of the death | |||||||
Time since death (months) (M±SD) | 33.8±7.0 | 32.8±7.1 | 32.2±7.0 | 35.0±8.2 | 33.0±7.0 | 2.27 (3) | ns |
Present at death (%) | 20 (87) | 12 (67) | 28 (90) | 4 (67) | 64 (82) | 5.67 (2) | ns |
Suddenness of death (%) | 13 (56) | 15 (83) | 22 (71) | 2 (33) | 52 (66) | 7.71 (2) | ns |
Perceived suffering (%) | 2 (9) | 1 (6) | 2 (6) | 0 | 5 (6) | 0.63 (2) | ns |
Psychological assessment at follow-up | |||||||
Global Assessment of functioning (M±SD) | 72.7±8.9 | 65.8±14.4 | 69.4±12.6 | 73.8±11.3 | 69.9±12.1 | 2.40 (3) | ns |
HAD-anxiety (median/range) | 10 (1–16) | 11.5 (2–19) | 9 (3–19) | 9.5 (4–13) | 9 (1–19) | 1.59 (3) | ns |
HAD-depression (median/range) | 5.5 (0–10) | 3.5 (1–14) | 4 (2–13) | 3.5 (1–9) | 4 (0–14) | 0.59 (3) | ns |
↵* Kruskal–Wallis or χ2 test.
HAD, Hospital Anxiety and Depression.