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Variation of practice and poor outcomes for extremely low gestation births: ordained before birth?
  1. Annie Janvier1,2,
  2. Jason Baardsnes3,4,
  3. Michael Hebert3,
  4. Stephanie Newell3,
  5. Neil Marlow5
  1. 1Department of Pediatrics, Bureau de l’Éthique Clinique, Université de Montréa, Montreal, Quebec, Canada
  2. 2Department of Neonatology, Clinical Ethics Unit, Palliative Care Unit, Research Center, Unité de Recherche en éthique Clinique et partenariat famille, CHU Sainte-Justine, Montreal, Quebec, Canada
  3. 3Parent representative
  4. 4Department of Human Health Therapeutics, National Research Council, Montréal, Quebec, Canada
  5. 5Neonatology, UCL Elizabeth Garrett Anderson Institute for Women’s Health, London, UK
  1. Correspondence to Dr Annie Janvier, Department of Pediatrics and Clinical Ethics, University of Montreal, Neonatologist and Clinical Ethicist, Sainte-Justine Hospital, 3175 Chemin Côte-Sainte-Catherine, Montreal, QC H3T 1C5, Canada; anniejanvier{at}hotmail.com

Abstract

no abstract is needed for an editorial

  • neonatal intensive care unit
  • end of life decisions
  • gestational age
  • family centered care
  • prematurity
  • communication
  • neonatal outcomes
  • clinical ethics
  • bioethics.

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Footnotes

  • Contributors All authors have drafted the ideas to be in this editorial together. AJ made a plan for the editorial. AJ wrote the first draft of the editorial. NM optimised the first draft.

  • Competing interests NM is Chair of the NHS England Neonatal Critical Care Clinical Reference Group.

  • Provenance and peer review Commissioned; internally peer reviewed.

  • Author note Parent representatives: JB is the father of Maren and Lily who were born at 25 weeks of gestational age, Lily died in the first week of life, Marenis is now 7 years old. MH is the father of Domenica who was born at 22 weeks of gestational age. She is now 5 years old. SN is the mother of Marcus, who was born at 23 weeks of gestational age, was not offered intervention and intensive care admission. He died during birth. For a more complete description of the families please see reference 6.

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