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NEIL MARLOW
A touch of cerebral palsy
Arch. Dis. Child. Fetal Neonatal Ed. 2001; 84: F4-F5 [Full text] [PDF]
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[Read eLetter] The Pakistani Parent and Cerebral Palsy News
Naseeruddin Mahmood   (22 December 2000)

The Pakistani Parent and Cerebral Palsy News 22 December 2000
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Naseeruddin Mahmood,
Consultant Neonatologist
The Aga Khan University, Karachi, Pakistan

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Re: The Pakistani Parent and Cerebral Palsy News

naseer.mahmood{at}aku.edu Naseeruddin Mahmood

Dear Editor:

I agree with Professor Marlow.

We at our unit in Karachi deal with a spectrum of parents ranging from the highly educated cosmopolitan couple to the the very illiterate labobourer family on the verge of poverty.Our practice has been to address the risk of long-term neurodevelopmental outcome right from day 1, based on the prematurity.During subsequent discussions the range of such disability gets discussed from severe disability to "a touch of cerebral palsy". My experience is that it makes acceptibility much easier for parents from all walks of life and helps in ensuring follow-up for sequential re-evaluations

I also forewarn them about the risks of intraventricular haemmorhage as there have been times when parents have focussed on the ventilator and the lung and have had difficulty dealing with the sudden IVH.

Finally,the housestaff has realised the value of this appraoch and are proactive in the appropriate counselling.

 

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